I am writing this post today because not only is it the first time I've had two hands to type, but because it feels as if the sun is shining and maybe, maybe? Kyler has turned a corner. The above picture is his third "coming home from the hospital" picture from last week. We are hoping the third time is the charm.
For five and a half weeks, our lives have been consumed with doctor's visits, sleepless nights, medications, worry, hospital stays and screaming baby. But they have also been filled with hours of sacrifice, countless acts of selfless love, prayers, and food given to us by so many dear family and friends literally carrying us through these rough weeks.
I want to write this post in hopes that these things are of the past, but Dave warned me that just because we might get a 40-degree day in February, it doesn't mean we can pull out the swimsuits and shorts yet because most likely there is a lot of winter left. The above view is what I spent 14 days staring at. The Children's hospital is building a new facility. I sure hope to never see the finished version.
I have sat in this uncomfortable chair way too long staring at the above view. (Yuck, I do look tired!).
This sweet baby has endured so much more in his first 2 1/2 months than ever seems fair. He is a trooper though. I am certain that it was no accident that he was given the trait of having a fighting desire to eat. This trait that I noticed from day 1, has truly helped him through his RSV and surgery. Because of this, he has gained weight through all of this!
This is the drive Dave and I have made way too many times on the freeway into downtown where the hospital is.
For the past week, since we have been home from the hospital, Kyler has spent hours and hours crying, had diarrhea, and the longest he slept at a time (until this weekend) was 20 minutes. A few nights he cried the entire night. We thought this was probably due to the oral steroids and high-powered antibiotic he had to be on, but then it continued several days longer than the medications. Then he broke out in a rash, so maybe he had another sickness on top of it all? He doesn't sound great yet, but he sounds much better than he did. So, for this minute, we are feeling better. Thank you. Thank you. Thank you to all of you for everything you have done for us. I know now how loved I am and how sometimes we just cannot do it on our own. I love you all!
7 comments:
we love you!
You will look back on this as a really difficult time but the lessons learned will be there forever. Kiss Kyler the smiler for me!
You both are so strong and it is so wonderful to hear that you have had so much support during this time! Glad to hear he has gained weight through all of this. Little miracles in the trials! We'll be praying for your sleep!
I have been through what you are going through more times than I care to remember. Our family loves you and yours so much and your are always on our minds and in our prayers. If ever you are in need I hope that you would call.
Jeni and family - I have been wanting to call you so badly to let you know I'm thinking about you and praying daily for your family, and this struggle you've been dealt. I realize you don't have the time to chat, so I thought a comment here was the next best thing. Know I love you all, and wish I could be there to pitch in and help my BFF! You and Dave must be/are very special, as God doesn't bless everyone with these sort of life trials...only those He knows will carry His message of faith, HOPE, and love forward with grace - clearly what you are demonstrating everyday to everyone around you, especially Kyler! I love you! BFF in Seattle
I've been having the impression that I should check in on your blog and see how your little one is doing....
Now I know why. We almost lost Lexi to RSV her first Christmas when she was 3 months old. That started a 3 year ordeal, involving hospitalizations for her first 3 Christmases, and more emergency room and doctor's visits that I could count. Natasha joined her in the hospital with RSV on the third Christmas. She was 10 months old.
It seemed that it would never end, that I would never get a good night's sleep, that we would never know healthy children. Oh, I hated giving her the steroids and the other medications, it felt cruel.
But we are stronger because of it. So many lessons were learned. And I am grateful.
I'm so sorry for what you are going through, and our prayers will be with you that he recovers completely soon.
However long it takes (hopefully ot long), the Lord will be with you and bless and sustain you.
Much love and prayers!
I'm finally getting a chance to catch up on your blog. I LOVE the picture of you and Kyler staring at each other. That says it all! You are amazing Jeni. Thank you for remaining so positive after everything you've been through these last few months. You are an example to so many! Fun hanging out with you today. :)
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